Wednesday, July 24, 2019

Side Effects


Let’s talk about side effects, shall we?  More specifically radiation therapy side effects, since I covered most of my chemotherapy side effects in previous blogs.


If you check out the cancer.net site regarding radiation, it gives a colorful list of possible side effects, both short term and long term, of treatment.  Some of the short term effects of obvious; skin irritation (dryness, itching, blisters, peeling, soreness – all of which I have) and fatigue.  Fatigue was one side effect that didn’t hit me as hard with radiation as it did with chemo, thankfully.  I am still struggling this week to get out of bed, but part of that is I am having trouble sleeping because of the discomfort under my arm from my burns.  Otherwise, the fatigue hasn’t been too bad.

As far as long term side effects, it’s still a little early to tell.  The list from cancer.net is as follows, along with some side notes from yours truly.
Radiation therapy aimed at the chest may cause these side effects:
Difficulty swallowingno difficulty swallowing, but I have had a sore throat for 2 weeks, which the doc said is from the radiation hitting the lymph node in my neck.
Shortness of breathnah, none of this.
Breast or nipple sorenessno boobs, so no problem!
Shoulder stiffnessyes, yes, yes! Dear God, both of my shoulders are a mess! I am also having some sharp chest pains on the cancer side, which just started this week.  Since I do not have any more treatments, I have to make a call to the radiation oncologist to see if he has any thoughts on this.  If I had to guess, it’s muscle pain from my shoulders and neck being so goddamn tight.
Cough, fever, and fullness of the chest, known as radiation pneumonitis. This happens between 2 weeks and 6 months after radiation therapy.I’ve had an on and off-dry cough, but the doctor doesn’t think it’s anything to worry about. We are keeping an eye on it.
Radiation fibrosis, which causes permanent lung scars from untreated radiation pneumonitis. The radiation oncologist knows how to lower the risk of fibrosis.see above.

One thing they don’t mention is the cording and the lymphedema.  I already had cording from surgery, since my surgery including taking out lymph nodes.  The cord I had after surgery was wicked, and my therapist had worked it out quite a bit before radiation even started, but warned me it could get back again once I began treatment.  Today at PT, she took a look and it wasn’t horrible, but she couldn’t thoroughly check as much as she wanted to because my chest and armpit and basically ground meat. So, she didn’t want to mess with the area and risk breaking open my skin or popping my blisters.  

As for lymphedema, I was hoping to avoid it given that my lymph nodes tested negative during surgery, and I didn’t have to have any additional taken out.  I noticed a week ago my arm and fingers on the left side were swollen, but I’ll be honest, I was in denial.  Oh, can’t get my wedding ring off… meh, I must just be too hot… it’s the weather.  Of course, when it cooled off I still couldn’t get my ring off… whoops.  I so badly didn’t want lymphedema.  Today at PT, the therapist confirmed she thinks I am starting to get it.  She gave me some short term compression sleeves for my arms to wear for the next few days to see if it helps, as well as athletic tape on my hand since my hand seems to be the worst of it.  She massaged the area today and it made the swelling go down significantly just in that short time.  I am hopeful I won’t have to wear a compression sleeve for the rest of my life.

All in all, my first week without radiation hasn’t been life-altering in any way.  Physical therapy sucked, but only because my skin is so painful and damaged right now.  Once I am a little more healed PT will work wonders on the cording and lymphedema, and it’ll get my arm range of motion where it needs to be. 

No comments:

Post a Comment